Monday night I opened up the laptop and sat down to write a blog entry. I’d been kicking around a few ideas for a good rant. I thought about writing my thoughts about the terrible shooting in Santa Barbara, California last Friday and the related issues of misogyny, mental illness and gun control. I also considered going off about my lousy backyard neighbor whose puppy escaped his yard and attacked several of my chickens in my backyard earlier in the day. I even considered unloading some thoughts about parents who shout and scream at their children in public as their form of discipline. Yet, nothing really worked for me as I sat there. My heart and mind just weren’t in it. Instead of trudging onward I closed the laptop and went to bed. As I laid there, I realized what I needed to write about; what was bothering me. It was the status update of my friend, AJ.
Well, results of Frehley’s MRI last Friday have shown that the tumors are continuing to grow…. It was our last visit at children’s hospital today, there is nothing more they can do on a medicine point of view. We will truly miss the oncology team at Childrens, they have been our saviors for the last 2+ yrs. They did say they may come for a home visit. As of today we will discontinue chemo meds and continue with just keeping Frehley comfortable. Lisa is taking the summer off of work to be with Frehley, She is doing ok….. we are working on a bucket list of things to do this summer. We will keep you posted on all our adventures. We continue to be in awe of all the support we receive from our friends, family and community. Please STAY STRONG FOR US we are going to need it.
