Fight Like A Girl: A Matter of Perspective

Monday night I opened up the laptop and sat down to write a blog entry. I’d been kicking around a few ideas for a good rant. I thought about writing my thoughts about the terrible shooting in Santa Barbara, California last Friday and the related issues of misogyny, mental illness and gun control. I also considered going off about my lousy backyard neighbor whose puppy escaped his yard and attacked several of my chickens in my backyard earlier in the day. I even considered unloading some thoughts about parents who shout and scream at their children in public as their form of discipline. Yet, nothing really worked for me as I sat there. My heart and mind just weren’t in it. Instead of trudging onward I closed the laptop and went to bed. As I laid there, I realized what I needed to write about; what was bothering me. It was the status update of my friend, AJ.

Well, results of Frehley’s MRI last Friday have shown that the tumors are continuing to grow…. It was our last visit at children’s hospital today, there is nothing more they can do on a medicine point of view. We will truly miss the oncology team at Childrens, they have been our saviors for the last 2+ yrs. They did say they may come for a home visit. As of today we will discontinue chemo meds and continue with just keeping Frehley comfortable. Lisa is taking the summer off of work to be with Frehley, She is doing ok….. we are working on a bucket list of things to do this summer. We will keep you posted on all our adventures. We continue to be in awe of all the support we receive from our friends, family and community. Please STAY STRONG FOR US we are going to need it.
Frehley is his 11 year old daughter. For more than two years she’s been bravely fighting a brain tumor. Her family and friends have rallied around her as she has received many treatments. Her friends started a Facebook page called “Stay Strong Frehley“. T-shirts were sold with the slogan “Fight Like a Girl” across the front. She even got to meet her idol, Selena Gomez. All in an effort to give Frehley encouragement and strength in her battle. While I’ve never met Frehley, I can tell you from following her story these last few years that she is one tough kid. Along with countless others, I’ve been praying for her to beat this. But, barring a miracle, she’s not going to win this battle. I cannot begin to imagine the wide spectrum of emotions AJ and his wife, Lisa, are experiencing right now as they are coming to terms with the fact that there is nothing more that can be done medically for their daughter. For me, as a father of six, I couldn’t imagine anything worse. I guess it took reading this terrible news about Frehley to shake me a bit, to help give me a little perspective. Those other blog topics can wait. They’re not really that important. I can write about them another time, if at all. But, for me, what really matters right now is thinking about what’s important in my life. It’s far too easy to take things like health and loved ones for granted. Sure, we’ve all lost loved ones, maybe even watched them die. We’ve all experienced times of sickness, maybe even extended sickness. But, for the most part, we’ve recovered and moved on with life. It would be easy to get depressed thinking about how sad it is that this young girl is going die way before her time. Instead, I’d like to challenge each of you, including myself, to use Frehley’s story as inspiration and motivation to shake out of the day-to-day routine and refocus yourself. Live. Love. Laugh. Appreciate. Make a family bucket list and start crossing items off as you make memories together.
While I’m not going to pretend to be close friends with AJ and his family, I can assure you that I’m going to continue praying for them as they go through this difficult time. Please note that I asked for and received permission from AJ before sharing Frehley’s story with you. Please share this story with others so that Frehley and her family may be encouraged. I’m sure that they would appreciate knowing that you’re staying strong for them, as well.
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5 thoughts on “Fight Like A Girl: A Matter of Perspective

  1. I don’t know what to say. Terribly, terribly sad.

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  2. Danielle Drage

    Wow. I opened my Facebook today and found myself in a world blended between friends of old and new, people that didn’t know each other 20 years ago, are now brought together because of on amazing little girl, that just happens to be really, really sick. From an outsider’s perspective, Frehley’s given a lot of gifts to this world, but the biggest one, is that of bringing people together. This blog post, you have shared, Carl, has shown up on my Facebook feed, dozens of times today. You live in Washington State, yet her story has gone “viral”, touching people all over the world, bringing us all together and teaching us about what is really important. I too, continue to pray for Frehley and her family, and that her legacy of bringing people together will continue to grow.

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  3. This is a great story and pays great homage to Frehley. I am Frehley’s 2nd cousin & her “godfather” and want to tell you that I believe she is an angel that God has sent down to us for this short while. It IS because of her that we are all taking a check on our lives and families. We are re-routing our anger and questions about why it is happening to her to having faith and joy that we got to know her as little or as much as we have. She is my hero. Words cannot express how grateful I am to know her and how terribly sad I am going to be when she does leave us. I just think of my grandmother June who is in Heaven probably biting at the chomp to see Frehley come to her. And that makes me feel better.

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