Monday night I opened up the laptop and sat down to write a blog entry. I’d been kicking around a few ideas for a good rant. I thought about writing my thoughts about the terrible shooting in Santa Barbara, California last Friday and the related issues of misogyny, mental illness and gun control. I also considered going off about my lousy backyard neighbor whose puppy escaped his yard and attacked several of my chickens in my backyard earlier in the day. I even considered unloading some thoughts about parents who shout and scream at their children in public as their form of discipline. Yet, nothing really worked for me as I sat there. My heart and mind just weren’t in it. Instead of trudging onward I closed the laptop and went to bed. As I laid there, I realized what I needed to write about; what was bothering me. It was the status update of my friend, AJ.
Well, results of Frehley’s MRI last Friday have shown that the tumors are continuing to grow…. It was our last visit at children’s hospital today, there is nothing more they can do on a medicine point of view. We will truly miss the oncology team at Childrens, they have been our saviors for the last 2+ yrs. They did say they may come for a home visit. As of today we will discontinue chemo meds and continue with just keeping Frehley comfortable. Lisa is taking the summer off of work to be with Frehley, She is doing ok….. we are working on a bucket list of things to do this summer. We will keep you posted on all our adventures. We continue to be in awe of all the support we receive from our friends, family and community. Please STAY STRONG FOR US we are going to need it.
Big Cheese Dad 
I don’t know what to say. Terribly, terribly sad.
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Wow. I opened my Facebook today and found myself in a world blended between friends of old and new, people that didn’t know each other 20 years ago, are now brought together because of on amazing little girl, that just happens to be really, really sick. From an outsider’s perspective, Frehley’s given a lot of gifts to this world, but the biggest one, is that of bringing people together. This blog post, you have shared, Carl, has shown up on my Facebook feed, dozens of times today. You live in Washington State, yet her story has gone “viral”, touching people all over the world, bringing us all together and teaching us about what is really important. I too, continue to pray for Frehley and her family, and that her legacy of bringing people together will continue to grow.
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Thanks, Danielle. That’s exactly why I wrote this in the first place. 🙂
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This is a great story and pays great homage to Frehley. I am Frehley’s 2nd cousin & her “godfather” and want to tell you that I believe she is an angel that God has sent down to us for this short while. It IS because of her that we are all taking a check on our lives and families. We are re-routing our anger and questions about why it is happening to her to having faith and joy that we got to know her as little or as much as we have. She is my hero. Words cannot express how grateful I am to know her and how terribly sad I am going to be when she does leave us. I just think of my grandmother June who is in Heaven probably biting at the chomp to see Frehley come to her. And that makes me feel better.
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Wow. Thanks for sharing this comment. So powerful. God bless.
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